Electronic Telegraph UK News Monday 7 April 1997 Issue 68 EU rule will allow medical research on handicapped By Sebastien Berger A NEW European convention will allow medical research to be conducted on people who cannot consent to it, even in cases where it does not benefit them. The subjects could include children, people in a persistent vegetative state, and those with mental handicaps. Anti-euthanasia campaigners yesterday condemned the convention's provisions and groups for the handicapped dismissed its safeguards as inadequate. Medical sources, however, insisted its terms were reasonable. The Council of Europe Convention on Human Rights and Biomedicine was signed by 21 countries - but not Britain - last week. It allows research on people who cannot consent, as long as it is research into their own "condition, disease or disorder" that could help others with the same problem. Dr Peggy Norris, chairman of Against Legalised Euthanasia - Research and Teaching, described it as "creeping euthanasia". "We have got to protect people who cannot give consent because they are very vulnerable and we have to be civilised enough to look after them," she added. The document specifies that any research on non-consenting subjects should "entail only minimal risk and minimal burden for the individual concerned", for example taking a blood sample, but campaigners for the mentally handicapped dismissed the safeguard. Klaus Lachwitz, secretary general of the International League of Societies for Persons with Mental Handicaps, said: "Unless these provisions are adequately defined, this protection is meaningless." Lord Ashbourne, a Conservative peer who has asked questions in the House of Lords on the subject, said: "Doctors do research for the most laudable reasons, but sometimes they go too far. What they are trying to do is get the door open a chink, and once it's open a chink they can kick it wide open. This came up with the Human Fertilisation and Embryology Bill back in 1990. They got the door open then and now we have got all sorts of things going on." Britain did not sign up to the convention last week because of the election but Health Department officials said it would be considered by the next government. Medical sources said its provisions were entirely reasonable, and similar to the Royal College of Physicians' current guidelines. They said many discoveries had been possible only by allowing research on non-consenting people. David Morton, professor of biomedical science and ethics at the University of Birmingham, felt research would be acceptable. "I think there are very special instances where it would not be unreasonable to consider using people in a permanent vegetative state in one way or another," he said. Prof Morton, who is also a vet, called for a national ethics committee to be set up. He said animals in Britain had better protection than people when it came to research. 8 April 1996: Patients in coma 'could be used for research' >
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